Protected: Instastiore – 2


Protected: Instastiore


The Celentano Family

The Celentano Family

Newsworthy: Everyday acts of kindness. (3)

A new blog series highlighting the art of caregiving.

Photo narrative by: Teresa Celentano

©Suzanne Fiore Photography

My life, the life I thought I was supposed to have, was supposed to be simple.  Quiet.  Mundane.  But that’s not what I got.  I got a roller coaster ride of a life instead.  A wind-swept, turbulent, upside-down, loop-de-loop of a life.  And the truth is, now that I’ve lived this life for quite some time, I see how I’ve grown as a person and I see how I never could have become the person I am today without riding this roller coaster ride of a life.  It’s the toughest, sweetest, most rewarding life I could have had!

My son, Thomas, was born with a rare genetic disorder: Ataxia-Telangiectasia. The frequency of A-T is only 1 in 100,000 births.  It attacks children, and, in addition to the high risk of cancer, the compromised immune system, and respiratory system concerns, it also causes a progressive loss of muscle control, including their eyes, their arms, their hands, their legs, and their feet.  It means their words are slurred, reading is difficult, playing is difficult, and dressing and feeding themselves is difficult.

Navigating their world is a challenge, and my world is filled.  It’s filled with love, laugher, smiles, hugs, kisses, a lot of trials and errors, and patience.  Lots and lots of patience.Thomas has always been an early riser, so up we go right around sunrise!  Richie helps him shower and dress while I pick up the bagels and set the table.  I always try to sneak around the house and complete some household chores as quickly as possible, but Thomas is not one to wait for his bagels!  He comes downstairs on his “stair chair” and chats the whole way down!   A typical weekend with Thomas starts out with his favorite: Bagels!!  And don’t forget the Lox and Cream Cheese spread!! Thomas has accepted that there are certain things he can’t do for himself, but that doesn’t stop Thomas from enjoying life!  He instructs us as to what his needs are at any given time.
“More cream cheese, please!”  “Another bite of bagel, please!”  “Drink, please!” And when Thomas is done with breakfast off he goes into the living room to play his video games. “Come on, dad, I’m ready!”  While I clean up I can hear the two of them intently playing on their video games.  It’s one of the few things Thomas has learned to master with confidence, conviction, passion, and fervor.  He can play for quite some time on those games!  It gives us peace of mind to know he’s happy and believes in himself.  Thomas has never ever considered himself handicapped, and he has clearly and enthusiastically stated so on several occasions!  “I’m not handicapped!  I just need this wheel chair to help me walk!” or “I’m not handicapped!  Give that space to someone who needs it!”  Ronan, our service dog, has been an important and inseparable part of our lives for almost 3 years now.  The process of receiving a service dog is a long and arduous one, but it is very well worth the wait and preparation. Ronan has miraculously given Thomas the courage to know he is important – that he has a job and a responsibility and that someone needs him instead of the other way around.  It was great for Thomas to see that someone was now dependent on him. Ronan assists Thomas with things he can’t do for himself, such as picking up what’s fallen, opening doors, opening drawers, and tugging and pulling items across a floor.  Ronan also knows our names!  With one quick “Get Alysa!”, “Get Daddy!”, or “Get Mommy!” off Ronan goes to grab our attention!  He pokes us with his nose or just stares at us and we know Thomas needs us!  Thomas’ responsibility to Ronan is to groom him and feed him, and Thomas takes his job seriously as Ronan enjoys the pampering!  It’s a perfect, poignant and impenetrable bond.

    Thomas has many pastimes.  He’s an avid passionate sports fan and a zealous movie theater attendee!  Richie and Thomas devote several weekends a month frequenting the atrium!  This is truly a special time for them to sit back and enjoy their time together.  It brings them a strong sense of bonding .

The day my children were first placed into my arms was surreal.  I felt an immediate surge of love, pride and joy.  And, as they grew older, I also felt the unparalleled surge of worry.  When I became a parent of a special needs child I felt my worries now were exponential, but, thankfully, they, too, would be balanced with unsurpassable contentment when his milestones were finally met.      

While I’ve come to accept and acclimate to our unique way of living, I know how hard it’s been, how hard it is, and how hard it will be.  Although I’ve left the tears and the sadness behind, I remember how many tears I cried wishing and praying for a cure, and how many tears I cried knowing he’ll never be able to walk, skip, run, jump, play, hit a ball, hold a pencil or crayon or hold a cup to drink.  I know how we’ve all had to make changes to accommodate him.  Growing up my mother engrained in us physical, emotional, and intellectual strength & courage.  She taught me “If you’re in the water, you have to swim.”  I thank her for this gift.  Although I’m always exhausted and I’m always drained, I will never give up! 

For more information about Ataxia-Telangiectasia please visit this link.

The Skivvies

Spent some time photographing The Skivvies, and their incredible guests, yesterday as they prepped for their show at Joe’s Pub. I also had the honor to capture some photographs of the show itself. If you haven’t seen The Skivvies yet – I highly recommend that you do! My extreme thanks to Lauren Molina & Nick Cearley. It was a pleasure to tag along with you both!

Sound Check: Dressing Room:

The Skivvies Show:

Erin & TJ

A wedding at home, a family with strong bonds between them, and a celebration of love. It was a beautiful day for a wedding in Pennsylvania.

    

Portraits of a Gift

I wanted to offer you a glimpse into my life for a change. My friends and family celebrated my birthday in the most unexpected and glorious ways imaginable that spanned the month of February. They gifted me with travel arrangements to where they are in order for me to spend quality time with them. Not only was this gift exactly what I needed but I couldn’t ever receive a better gift than quality time with the people that I love! They are the most extraordinary gifts in my life – not only on my birthday. Everyday I have so much to be grateful for…..and I am…..extraordinarily grateful.

The Gift of Them.

February 2017

Quotes by: John O’Donohue

Photos taken in: Ocean Park, Washington

Siesta Key, Florida

&

Boston, Massachusetts

©Suzanne Fiore Photography

Ocean Park, Washington “Your friends were once strangers. Somehow at a particular time, they came from the distance toward your life. Their arrival seemed so accidental and contingent. Now your life is unimaginable without them. Similarly, your identity and vision are composed of a certain constellation of ideas and feelings that surfaced from the depths of the distance within you. To lose these now would be to lose yourself.”  “The sacred duty of being an individual is to gradually learn how to live so as to awaken the eternal within you.”

Siesta Key, FloridaThe hunger to belong is not merely a desire to be attached to something. It is rather sensing that great transformation and discovery become possible when belonging is sheltered and true.   

Boston, Massachusetts We were sent into the world alive with beauty. As soon as we choose beauty, unseen forces conspire to guide and encourage us towards unexpected forms of compassion, healing and creativity.   “Your noble friend will not accept pretension but will gently and very firmly confront you with your own blindness. Such friendship is creative and critical; it is willing to negotiate awkward and uneven territories of contradiction and woundedness.”

The Douglass

Brooklyn! If you haven’t stopped into The Douglass for a cocktail and a burger, you may want to consider doing just that. I usually photograph people – but this job quickly opened my mind to include photographing food when the staff allowed me to taste all of the food you see here! Every bite was delicious! I may have sipped a tasty drink or two as well.

The wait staff is exceptional and there is plenty of space at this bar. There is also a room in the back perfect for parties and large groups!

If you like good eats and a fun atmosphere – check out The Douglass!

©Suzanne Fiore Photography

SEE Eyewear

Check out this “Day in the Life” session with SEE Eyewear. I visited their 4 locations in NYC, observing and capturing their phenomenal customer service. The concept of this brand is unique and the product attractive offering a wide variety of styles. I returned to the SoHo location for an eye exam and was so impressed by the care and attention from the doctor on staff.  Visiting SEE Eyewear is a guaranteed enjoyable experience.

Take a look at what you can expect when you visit SEE by watching the video below.

Thanks to:

SEE Eyewear – Greenwich Village

SEE Eyewear – Columbus Avenue

SEE Eyewear – SoHo

SEE Eyewear – Brooklyn

 

Music Credit:
Everybody Got Their Something
Artist: Nikka Costa
Available on iTunes

©Suzanne Fiore Photography

Alexis

A headshot session with this powerful woman, Alexis.

     

©Suzanne Fiore Photography

Ali

This blog post features lovely Ali.

I’m sharing this portrait session with you to give you an example of what it looks like when I bring my studio to your home! My traveling studio consists of one light, a reflector, my camera gear, me and you. A lot can be accomplished with a simple setup.

Home can offer comfort, a unique and personal background, and props that you’re familiar with. I always strive, as your photographer, to make you feel as comfortable as possible with me and with being in front of my lens. I also understand that being in front of a camera can be a real challenge for many no matter how comfortable you feel with your photographer. It’s a challenge for me! Choosing a place where you feel secure can help bring out your most relaxed and honest self. Despite my own discomfort in front of a camera, I always let my nieces take selfies with me or I hand them my camera when they want to photograph me. I do this because I know that one day – when I’m not here – they might want to see me. A photograph gives them that gift. I encourage you to find a way in which to be comfortable in front of the camera. Be in photographs with your kids, friends, family members, spouses, and have a portrait taken of yourself. If being in your home will help you to feel most comfortable, I will bring my studio to you.         

©Suzanne Fiore Photography